Alanna Wong Featured on Anderson Cooper Speaks about Kleine Levin Syndrome - Kls

Alanna Wong suffers from a rare neurological condition called Kleine-Levin Syndrome also known as sleeping beauty syndrome. Alanna Wong raises awareness for Kleine-Levin Syndrome Kleine-Levin Syndrome is also known as sleeping beauty syndrome Kleine-Levin Syndrome is no fairy tale There is nothing pretty about kleine-levin syndrome KLS is a living nightmare and you don't know if things are really happening or not Kleine-Levin Syndrome Kleine-Levin Syndrome also known as sleeping beauty syndrome Kleine-Levin Syndrome is one of the rarest neurological conditions worldwide Kleine-Levin Syndrome is a devastating illness and takes a toll on families Kleine-Levin Syndrome (KLS) Kleine-Levin Syndrome patients alternate between sick and healthy states Kleine-Levin Syndrome is like a walking coma Kleine-Levin Syndrome also known as sleeping beauty syndrome Sleeping beauty syndrome Kleine-Levin Syndrome Kleine-Levin Syndrome Sleeping Beauty Syndrome Alanna Wong and her parents raise awareness for Kleine-Levin Syndrome We hope to find the cause and cure for Kleine-Levin Syndrome You feel like you're in a dream when in a KLS episode I don't know if things are really happening or not when sick The longest episode I've experienced is eight months Kleine-Levin Syndrome When you go undiagnosed that is extremely difficult It is critical to raise awareness for Kleine-Levin Syndrome kappa sons on when i appear to be awake i'm cell and asked me to speak twenty four seven like during episodes i can wake up they can go to the bathroom i cant eight um... you can talk and i can talk even and outright seat of my time completely different than i am not there are times when she has been in an episode and been gone for three weeks and when she wakes up she doesn't even know she was sick and shell think it's the day that's it was when she felt that they paid eighty four shots that we we actually have some videotape the truck bomb during uh... during one of these episodes endure you sound like really like a child and in this list before that hinted that prepare for that outflow why don't you think that there is a problem the rapid paul came through here do you remember that no i have no memory impacted people believe you because i mean i look at my first impression if i didn't know what you were separate state you're doing a bad imitation of a child that this is a your did the your faking this or that your uh... your play acting like a shot uh... how many people are like tell me that i was speaking at people file you know by just was choosing to be like that but their is known choosing of who would choose to act like a child wet fifteen eighteen-year-old girl what act two or three ralph no-one insist on a sailor bring in uh... were over nelson specialist bestselling author of the book all those thusly doctors diet plan uh... doctor bruce is here at our first call up even listening uh... how common personal our sleep disorders the sleep disorders themselves are quite common on their eighty-eight known sleep disorders out there uh... but what's going on here is actually fairly rare and when i saw it by i'd read about it but never actually been seen act but the issue really asleep four months at a time people that they last time can sleep for eighteen twenty twenty-three hours in a day they do get up and you can go to the bathroom they can't even have a conversation during those particular times but if you walk in there while they're asleep in their bed they are held first for did were you when you would take her to the doctors over the years and what the dr sally did they tell you is a sort of psychological condition just like most of the reasonable sounds like a lot of questions doubles institute for schizophrenia really you know and that's actually quite common and to see a misdiagnosis in this type of situation dot depression is a big one yet right i'm sure the i'm sure that was trying to multiple stain depression depression medications will probably try to add well and sometimes i can expect the situation worse yeah better we had to take it at the hospital and she was put on the any medications right she did not wake up until i took her off at the and three months later and i didn't realize that was the first long episode she had ever had before that they were only days there were three to five p fumbling that's normal what you're describing these extended episodes are even more rare within a rare disorder about what what we can now get a quick break we're gonna talk to doctor finally diagnosed a lot of really change her life uh... also talk to a woman who text people when she's asleep she zuniga diagnosed the first time today on our show staging with her meeting i think you can play a penny uh... command he loves you she would never say that there owes a lot of which is coming up so clause by klein eleven syndrome which are rare disorder that causes excessive sleeping extreme fits a confusion sometimes lasting for months at a time about the lawn and her parents die and in randy also joining us via skype it is the doctor who diagnosed a lot of finally uh... after she'd been living with k less for seven years without any answer she finally went to work doctor a keogh back together so much for for being with its did you with the media lingo what was going on with a lot mysore two separate visits trilogy about a week apart contribution is very very different thirty on the first flinches very vibrant as she is now on the second she was uh... there's someone said per child like behaviors elected to complete sets of imaging stranded understand what was going on her brain so what the physiology for brandon's Kleine-Levin Syndrome and she has real fundamental changes in the the blood supply to the center for a break between when she symptomatic england she isn't soak she's an underlying physiological abnormalities explains chrysanthemums or is the very first victory can this be treated the two hundred is generous support of the concourse workfare s most people get better in their twenties innocent out over about four years and misuses she is coming tremendous distance from from when i first saw i'm sure this would press five what she's done cheers uh... machine her family are committed to finding an answer so that she didn't know where she's going to go and and what the concourse Alanna Wong and her parents raise awareness for Kleine-Levin Syndrome Sleeping Beauty Syndrome the reason why we're speaking out is because it is so important frankhelen stafford a support there is absolutely no choice in this and if we are forcing our children to go to school when they can't go to school Kleine-Levin Syndrome Alanna Wong Life Kleine-Levin Syndrome Alanna Wong Kleine-Levin Syndrome also known as sleeping beauty syndrome Kleine-Levin Syndrome them and then in fact our hope when they need to find a cure and pandit treatments anacostia this condition