Francheska

Francheska by Luis Miranda (Translated by Victor H Ortiz) Cuarto Poder Francheska is a victim of a rare disease that has made of her short life, unbearable she is allergic to 94% of the food each ingredient in any food can cause her intestines to become poisoned which can lead her to suffer endless diarrhea and bleeding that can only be controlled with hospitalizations She has had this disease her lifetime she cannot go to school she can not lead a normal life she suffers from endless pain for seven years (Mother) it is more than six years that I have to deal with this and... and I really don't want for any child to have this disease... I am begging to the government of Peru to give a budget for research to fight this devastating disease because my daughter is not the only girl many children like her need help with special nutrition (Reporter) Her robust cheeks give her the wrong appearance. it's actually the product of steroids contents of medicines she consumed the truth is that she always is on the verge of malnutrition only last year she was admitted in the emergency room 18 times and so far this year 10. (Mother) There was a Christmas Day that she was waiting anxiously... and we asked, dear what do you want for Christmas? Nothing mom... I want you to buy my medication, I just want my medication. because you do not have money to buy something else. I remember my sister gave her 10 Peruvian soles ($3) and she bought a volleyball and she put it in a bag and put it under the Christmas tree, and she said this is my gift and she couldn't open it because she was admitted to the emergency room on Christmas Day. and we had her hospitalized. and that really makes a big impact in my life she is a child a girl and children... I have been a girl, we have illusions she is a child, but she understand She said no Mommy.. when someone give her allowances, she save it Mommy this money is for my medication with this I'm going to buy my especial formula I gonna need it! and she has a purse. I'm almost there, I have one hundred ($38) my uncle gave me so much, my cousin gave me so much... and I'm putting together a hundred but more money is needed, no mommy? I said, dear why don't you buy yourself a doll? and she said, no.. Why? I need to take my medication I need to take what I have been prescribed no? even thought she's a little girl she has mature... she's a sweet little girl but her behavior has change drastically she cries... how can she not cry? the pain is constant (Reporter) this is a symptomatic disease in a modern world where many children are getting sick by overeating but with Francheska is the opposite "She you can not eat" because almost every food make her ill (Mother) I wish... that someone turned her suffering inside out. is not easy for my little girl to be medicated 10 times a day I could not bear to take so many pills but she says, she does want to feel good when... when she is sick and vomiting, vomiting and vomiting she faints.. and diarrhea... .. no .. she lose consciousness. and sometimes when she reacts, she said, mom have the doctors perform surgeries on me, what ever it takes... I rather die, I cannot take it anymore many years... many years with a child living with chronic pain. (Francheska)Why you're crying? (Mother)I'm not crying, I'm sad... I had remembered your grandmother I just saw her picture Is true (Reporter) her medical condition is called Eosinophilic Colitis An incurable disease that doctors know little about a disease that can only be alleviated with a costly enzyme that cost 6,450 Soles ($2464.74)monthly the formula which is capable of feed the child but does not tastes good Francheska was born doomed to not be able to taste food, the food that everyone consumed not only to subsist but for pleasure two of my husband friends had. given away two cans and the insurance gave us 4 cans As for cost? 215 Peruvian soles ($95.91) how many she need a month? 30 cans a month  28 to 30 .. and that comes out to? nearly 7000 soles ($2675) a month... in addition to the 2,000 ($764)budget we have for her medication and diet the girl needs? no .. that's a total of 9.000 ($3439)Peruvian soles... 9.000 ($3439) soles to support her? that is why we pray and ask for our health insurance to help us for .. the full treatment This formula (Neocate) is the only source of life for my child (Reporter) the girl takes a many drugs per day that she known them by name, like the chocolates or sweets that she cannot ingest what is the name of this med dear? omeprazole. this to prevent? what? for gastritis you take this every day, right? before breakfast half hour before breakfast .. and why do you take the prenizona cheska? for the pain and this one, she uses... what is this call? Enterogermino is to protect the intestinal flora, because whenever she makes bowel movements she always gets the runs, always.. what do you call this? Zinc why do you take Zinc for? To grow. (Reporter) the worst of this disease is that has also condemned the whole family the cost of hospitalization and All the medicines are expensive, due to that they had to sell their own home and then their car and their motorcycle their belongings, their furniture, their refrigerator (Mother) I have a freezer that someone has loaned to me that it is designed for selling ice creams a kitchen table and my children's bed only . and all that you see around me and .. things that we have not been able to finish, I have this house because my mom .. has left us, she passed away. (Reporter) The mother, Julissa Ruiz had to leave her teaching job to dedicate all her time to the girl. She should have subjected her self to an operation to removed a cysts. But she can not leave her daughter without attention Ronald, her father had to give up a good job in the provinces to seek another that allows him to be near home all expenses of the child's disease make it impossible for this family of Satellite city to give their other 17 years old child a higher education despite his excellent qualifications Several universities has give him free admission I think I've sacrificed my self enough studying and .. to not have that facility of other kids who can afford a university or an institute the only thing that is left is, work it's not fair, it's not? No, it is not fair I know that.. I can work and study at the same time, I will do my best.. I know I can.. what do you like best about your sister? I like her smile, when she laughs I like to see her happy I do not like to see her sad or crying There are time when she's sad because she needs to be admitted to the hospital because she is ill... how do they call? she gets diarrhea because of her disease and she gets sad and she said Frank please don't leave me I do not want be sick, no, no I don't want to go back to the hospital I like her smile and I like to see her happy. this exceeds the colitis health budget the enzymes which keep her stable are not considered medicines but food and their insurance does not required to provide however they have partially provided an small part of the treatment there are only seven recognized cases of this rare disease in Peru but what is known is that there more than 30 cases and may be more. a bad characteristic of our times where chemical and food allergies appear more frequently in our children a disease that is finally being diagnosed and deserves more attention a disease that turns food into venom and have painful consequences For the people who have not grasped that part or could not see this story from the beginning this is a girl who has a allergy very undesirable, that makes it difficult for her to eat almost anything and if you are confuse about her healthy appearance actually the girl looks chubby but that is not caused by feeding, the child is malnourished her appearance is caused by taking cortisone and by other drugs that make her swell. we see her smile and in good spirit because she is surrounded by the love of her family and as her brother said that she has a good spirit but in reality she is not happy and she cannot easily smile because she is going through tough times and that is why we have desired to bring this report to you you may ask, but why the story of a girl? because it is a dramatic case and indeed in which we may be able to help I think that's important that this type of reporting travel far and everyone that can do something actually , do. can be in different areas, for example... I'll start with the part that has not as much about the girl but it moves my self especially, as the loving brother who is 17 years old with good grades that has demonstrated good effort all his life, is a child who can not study due to the situation of his family there must be an educational institution facilities that can help so that he can follow a career that will facilitate a job that at the same time let him study and support him on this attempt. The boy has shown and demonstrated ability and effort in his life he must have to find an answer in the world an answer it must be someone who will give a scholarship to give him an option for him so that someday he can help his family because if he starts working at age 17 in reality, he is doomed to probably not make much money and to not be what he could become as to the family obviously can one imagine what it is to spend 9.000 ($3439) soles (Peruvian money) in one child? let's see if we can get the insurance to support, however in the meantime any help is welcome .. the phone 5 5 3 4 4 6 8 9 9 4 -9 6 2 4 4 8 Hopefully many people reply to this This request for help, it is not only a drama is your chance to make difference in someone's life